Screwed something up big time!

In my pre-Paleo days, I had tried both fish oil and probiotics. Both seemed to set off my RA, especially the probiotics. When I started Paleo, I started fish oil relatively quickly and without issue. It actually seems like fish oil helps, and I will sometimes take an extra if feeling a little sore.

With the probiotics, I decided to wait until school was out for summer to try them. Good call. I was trying 1 kind that my husband and son had been taking, but they didn’t seem to be doing anything, good or bad. Sunday, I bought a different variety, thinking I would alternate the varieties every other day. I took one of the new ones Sunday. Monday I took the old variety, then Tuesday, the new. On Tuesday, I started getting very itchy, then breaking out in some hives, then I started getting symptoms like I do when I eat MSG and go into anaphylactic shock, so I quickly took some benedryl, which seemed to work. The bad part, I fell asleep from the benedryl early last night (around 8:30). I’m now awake, still mildly itchy, and mildly sore all over, moderately sore in my neck.

Likely, this is the probiotics. It could also be the fresh cherries I ate (hadn’t had them since I’ve been Paleo) or a turkey burger (less likely, as they were organic and only had rosemary on them, plus I’ve had them twice before).

Figuring this out might be a painful process!

Remission?

To me, remission means your disease is gone. Hopefully forever. You don’t have X anymore. A better definition of remission is “your disease is still there, but we can’t detect it anymore.”

On June 7th, I had an appointment at the rheumatologist. I showed him the bloodwork I had done at the end of April, with my good inflammation markers. He said that bloodwork in combination with his exam, my self-report, and my steady (not worsening) joint damage on xray means I am in remission. WITH Enbrel, Paleo Diet, and exercise, my RA is not detectable.

Something I learned via the doc:
Of people who reach a “remission” state like mine and stop their meds:
60% are able to continue for 6 months or longer without meds.
40% need to go back on meds rather quickly
Of those 40% who go back on meds, 1/3 are unable to get their disease back under control, at least within a 6 month period.

At some point, 1-2 years in the future, I hope to decrease or stop my Enbrel. I’m not ready yet. Still, it’s great news.

I’ve spoken to a few people recently who have been diagnosed with RA. They’re all interested in the Paleo Diet approach, and I know 1 has started the diet. I hope we’re able to see similar results for them all!

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