A little about the site:
My name is Lori. My husband and I started this website in early 2006. I flared after the birth of my son in 2005. There were no answers out there, and my doctor at the time was of little help. Enter MomsWithRA.org! It’s a place to meet other women with RA who have kids, want kids, or just need to chat about RA. We also welcome any women/family members with other autoimmune conditions. Please join the conversation!
It is now 2013, and we are doing an extreme overhaul of our website. I think these last 7 years have given a ton of information, especially on our forums of over 1200 posts from women with rheumatoid arthritis. We’ve expanded into Facebook, blogging, Paleo, and are even trying videos. We’re trying to partner with some other online sites to give moms with rheumatoid disease a place to go for information. It’s time to pretty-up the site though, and keep expanding our reach to help moms who need it!
A little about me:
I’m now 40 years old (agh)! Although we wanted to have more kids, it seems unlikely now. We have a beautiful son, Cavan, who is 7 years old. I was diagnosed with rheumatoid disease/arthritis in 1996 at the age of 23. I had 3+ really bad years, including liver failure from methotrexate (don’t worry, this doesn’t happen to everybody!) Hydroxychloroquine also failed me. I had 6 really great years on Enbrel (the first biologic, which came out in 1998). I stayed on Enbrel at a lesser dose during my pregnancy. Cavan was born a healthy 6 pound, 4 ounce baby boy. I had 5-6 years of significant ups and downs following the birth of my son. In 2010 or so, I started a great exercise program at a hospital. I can now do Pilates, which has helped immensely. On January 9, 2012, I started the Paleo Diet to see if it could help my rheumatoid disease. It has, more than I ever could have imagined.
That brings me to today, August 17, 2013. My RA is well-controlled with normal inflammation markers, and great overall health (at least as far as my blood work shows). Remission is a great word, and I’ve heard it a couple of times from my doctor. This doesn’t mean I don’t have RA, but rather it isn’t detectable with my current treatments of Paleo Diet, Pilates, and Enbrel. It is literally a daily battle to keep my body healthy, but it’s working! And thus far, I’ve lost 51 pounds. Bonus!
Please keep in mind that the advice and discussions given and received here are not a substitute for your doctor’s advice. We are not medical professionals, and any changes in your care or that of your child should be done under your doctor’s advice and supervision.
So, join me, join the Facebook group, or join the forums. Introduce yourself! Join the conversation. Share your story, and help other moms now and into the future! Welcome!